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5:48 AM
August 27, 2011


Fanny

Mtrl/Rive-Sud

New Member

posts 2

Hi Everybody,

My name it's Fanny. I'm 33 years old …I've been diagnosticated rds on my

left leg on Feburary 2, 2010. Since that time i've been through many tests &

traitements! They also see chronical dorsal  problems with the sciatic nerve.

It's very hard to deal with that alone!! I will like to speak with rds

patients just to be anderstand by somebody who knows about it's!! And I will

also like to know if there is a event or runing tour for that dystrophy????


* I'm a french personne so sorry if my english is not appropriate!

thx Fanny xxx

4:15 PM
November 23, 2010


confused

New Member

posts 2

christy said:

daugher diagnosed in March 2010 and started physio right away. 

Started gabapentin for pain and is finally walking and running again

but with some pain. Now having chest pain and back pain in her muscles.  Is this common?



Hello Christy,

I was recently told that I may have rsd.

I have had pain since receiving a whiplash injury.

Gabapentin was the only thing that helped my pain, I am now getting

injections, which have help me function better for a few days.

My pain is mostly in my left side, from the top of my head to my chest

and upper back, down my left arm to my hand.

Not sure if this is common, new to this.

Nancy

2:37 PM
August 19, 2010


trish

New Member

posts 1

I was recently diagnosed with RSD after I had suregry on my left foot on June 7th, 2010, it is extremely painful. I have taken many different painkillers but nothing works. It prevents me from getting a proper sleep. I am starting physio next week and really hope they can help me. I came looking for information on this condition because until now I had never heard of it. If anyone has any suggestions of things I can do to relieve the pain please post it, I am willing to try anything.

11:46 AM
July 11, 2010


Douglas

New Member

posts 1

I had surgery first of October 2008,I had my right ankle fused,after a year and a half finally went back to work in retail,not sure if I have rsd or what.Kind of hopeing some one can steer me in the right direction .Since my sergury both my right and left feet swell and my left is so painful if I haven't been on it for even a short period of tim it can bring tears to my eyes.At first I thought it was couse I hadn;t been on my feet much for so long but after working a month it seams to be getting worse.So if some one has any ideas I would be very thankful 

11:21 AM
June 7, 2010


christy

New Member

posts 1

daugher diagnosed in March 2010 and started physio right away. 

Started gabapentin for pain and is finally walking and running again

but with some pain. Now having chest pain and back pain in her muscles.  Is this common?


4:10 PM
May 31, 2010


sammy

Iroquois Falls, ON

New Member

posts 1

I have been suffering with chronic pain for almost 8 yrs now.  I have just recently been diagnosed with RSD.  I've had Carpal Tunnel surgery as well as Ulnar Nerve surgery and way too many cortizone injections.  So many different treatments & incorrect diagnosis'.  Both of my arms are now pretty much useless.  My life has been completely turned around by this disease.  It completely controls my life as much as I try not to let it.  I know there are so many people that are worst off than myself and I feel for them.  I cannot imagine how people with full body RSD manage.  I cannot fathom the idea of having the pain I have in my arms everywhere in my body.  I pray & hope daily for a cure for this monster of a disease.  I live in Iroquois Falls ON, it is in the Timmins area.  Our medical profession is very ignorant of this disease & it's symptoms.  I had to go finally go to Toronto to get correctly diagnosed and now hopefullly some treatment options will be successfull.  I'm soooo tired of taking pills. Oxycodone, Oxycontin, Lyrica, Efexr, B12, Vitamin E, now blood pressure issues will also be treated with more pills.  RSD = Really Sucks Disease! 

I hope to meet some people in this forum, especially if from my area, to talk to… people who really know what I'm going through.  And I would really like to be there for others who are going through the same.  Take Care all & be blessed with minimal pain & High Spirits!

3:03 PM
April 1, 2010


shryn

New Member

posts 1

I have been just diagnosed with RSD and not sure what i'm in for, i do know i am in pain 24/7 in my foot/ankle.  i have swelling and discolouration in my leg and that is how i was diagnosed.  this may sound weird by my ankle burns and it feels like it is wet….  I am looking to talk to others to see how they are and what to expect

10:39 AM
March 10, 2010


yvonne

New Member

posts 1

can anyone tell me there case and how they are doing?

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